I was blessed this morning to have the opportunity to attend a wonderful church service. I went to church alone, which is unusual for me, I cannot recall the last time I went to church without my children but they were of course in my thoughts and prayers as they are always. Emeraude slept at [Read more]
Long day… I am very dissapointed and concerned that I am still dealing with fatiuge, pain and other symptoms although my solumedrol treatment is done. I did not go to the hospital yet today although this is not from lack of pain but rather because the doctor prescribed new oral pain meds that [Read more]
I finally took up the offer of yet another very kind lady who had given me her phone number during the bad months at the beginning of the year when I was going to the hospital in way too many taxis. I felt a little odd calling someone I don’t know for a ride but [Read more]
When I finally got called in Mrs. Ormston had completely won Emeraude over ...and she (E) had no interest in accompanying me lol. Mrs. Ormston said she didn't mind her staying with her to play and I knew this was sincere and that she was in great hands so let Emeraude stay with her having fun... [Read more]
This week seems to be flying by faster than I can process. I promised the EDC photos that I have not even had a chance to look through yet *eesh*, Tomorrow I have an appointment with Dave (from the EDC) to work on my cover letter for Second Story Press and I had hoped to be much [Read more]
Well, my treatment was definitely successful…I’ve been scared too say that, scared to jinx it, scared that I might be wrong and have it fade after just a day or two but it would seem that I am free – for now. Last night I even went in for a shot of Dilaudid, partly worried [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Great morning with my girl. Happy to be getting our mornings back somewhat (result of solumedrol I think). We started out making ‘soup’ and recipes with the beads and too many bowls/ladels/potato masher lol and then switched to some bracelets. Emeraude began working on a necklace for [Read more]
I was relieved to see Bonnie was attending when I went in this evening. The IV that had been put in last night (anticubital by my request) looked awful, the butterfly sides not having been taped had gouged into my arm (read yesterdays…) and so I asked her if she could put in a new [Read more]
Well, the 5 day predinose attempt is done (it finished Sunday); Dr.Crawford wanted me to take 50mg of oral prednisone daily as he though t this would improve my symptoms (I am as I write, feeling a little concerned that perhaps he too is falling into the idea of focussing on pain as my worst [Read more]
I’ve fallen ridiculously behind on my blogging. My days seem to blend in to each other as it has been necessary for at least a month now that I go to the hospital every day (sometimes even two or three times in a day) for injections for pain meds. I am incredibly fatigued and feel [Read more]
Symptoms are really interfering with my ability to have any quality of life. 8am 50mg oral prednisone 120mg ratio-morphine Lloyd had to be at school early for a basketball game and at 8am was just putting Emeraude next to me in bed to say goodmorning. I struggled to balance on my legs as there [Read more]
day 3 steroid treatment did not go so well… the treatment was okay, the results PLtheRhhh (that’s a raspberry & thumbs down). my face really is as red as it appears on the photo :S (that’s the steroids). Emeraude was sweet enough to come keep me company as I received my [Read more]
"my IV Shunt had been put in without any gloves port-a-cath (which I have under my left side, kind of below my collar bone) being worn and I was a little concerned with the possibility of yet another skin infection (I dealt with many of these before finally having my 'picc line' and then about a [Read more]
I began my treatment this morning… tonight will go smoothly having had the solumedrol early in the day. I ate a few packs of crackers during the treatment (which was over the course of about an hour) and they seemed to settle my stomach. I was thrilled when, near the end of my treatment, I [Read more]
