Today was crazy… Too much time wasted at the hospital and without any good reason (mix ups and miscommunications ruled my day which can be extremely frustrating, thankfully the nurse who was working Friday evening is very patient and sweet). So, when I was finally able to get to the [Read more]
So, we ended up making our toilet paper puppets instead of the pipe cleaner creatures although I did show Emeraude a quick version of the pipe cleaner creatures while Lloyd was in the grocery store and we were waited in the van and she agreed that it is a definete must-do for another day :). [Read more]
This is a really easy one. Be careful of course with the kettle… You can add almost any fruit to Jell-O but pineapple and, hmmm… I forget the other but they are listed on the box. We were making strawberry jelly and opted to add sliced bananas in ½ the batch and fruit cups (x2) [Read more]
It has been a long, complicated frustrated week but as usual, my children kept me focused and on getting back on my feet no matter what. I have had alot of difficulty sleeping and so the blog has suffered. I hope to catch up on posting the major events of the week this weekend but [Read more]
Posting photos for now, will try and fill in the story later as time permits (and pain levels… having a worse than usual day for pain). [Read more]
Though I have to be aware of how much physical activity I do, I have come to realize that in regards to living with multiple sclerosis it does not seem to generally make a difference as to fatigue or pain levels afterwards. Having said that, keep in mind that no two people diagnosed with multiple [Read more]
Emeraude then put the millipede gently into the ‘bug trap’ as Lloyd explained to her that they needed to add some natural elements to the cage... [Read more]
Had some spare time @ the hospital earlier and took advantage of it to make this video… [Read more]
LOL… that’s Emeraude’s motiviational song for when she & Lloyd are doing there Saturday morning garbage pick up around the house, great tune lol Spent way too much of my morning at the hospital earlier although it’s hard to complain about it when Vickie drove me and lost [Read more]
this excruciating, dibilatating pain in my bones like I have rods being shoved up my legs, arms, my hands and feet being a pile of broken bones that if I could somehow keep in one piece I would get some break from it... I know that there are answers to me having [Read more]
Long day… I am very dissapointed and concerned that I am still dealing with fatiuge, pain and other symptoms although my solumedrol treatment is done. I did not go to the hospital yet today although this is not from lack of pain but rather because the doctor prescribed new oral pain meds that [Read more]
On a different note, I was advised today that my readership included a group I was not previously aware of. Apparently there are some among the staff @ MGH (our local hospital) who are fond (or perhaps that's not quite the right word lol) let's say who have noticed my blog. Apparently some are [Read more]
Ok, another very busy day (in spite of having less than adequate supplies of energy). The kids were a huge help. So was Vickie as she has been ever since my symptoms began coming back with a vengeance last week. She goes beyond giving me rides to the hospital and has been calling to arrange [Read more]
I finally took up the offer of yet another very kind lady who had given me her phone number during the bad months at the beginning of the year when I was going to the hospital in way too many taxis. I felt a little odd calling someone I don’t know for a ride but [Read more]
When I finally got called in Mrs. Ormston had completely won Emeraude over ...and she (E) had no interest in accompanying me lol. Mrs. Ormston said she didn't mind her staying with her to play and I knew this was sincere and that she was in great hands so let Emeraude stay with her having fun... [Read more]
