I was blessed this morning to have the opportunity to attend a wonderful church service. I went to church alone, which is unusual for me, I cannot recall the last time I went to church without my children but they were of course in my thoughts and prayers as they are always. Emeraude slept at [Read more]
LOL… that’s Emeraude’s motiviational song for when she & Lloyd are doing there Saturday morning garbage pick up around the house, great tune lol Spent way too much of my morning at the hospital earlier although it’s hard to complain about it when Vickie drove me and lost [Read more]
Long day… I am very dissapointed and concerned that I am still dealing with fatiuge, pain and other symptoms although my solumedrol treatment is done. I did not go to the hospital yet today although this is not from lack of pain but rather because the doctor prescribed new oral pain meds that [Read more]
On a different note, I was advised today that my readership included a group I was not previously aware of. Apparently there are some among the staff @ MGH (our local hospital) who are fond (or perhaps that's not quite the right word lol) let's say who have noticed my blog. Apparently some are [Read more]
Ok, another very busy day (in spite of having less than adequate supplies of energy). The kids were a huge help. So was Vickie as she has been ever since my symptoms began coming back with a vengeance last week. She goes beyond giving me rides to the hospital and has been calling to arrange [Read more]
I finally took up the offer of yet another very kind lady who had given me her phone number during the bad months at the beginning of the year when I was going to the hospital in way too many taxis. I felt a little odd calling someone I don’t know for a ride but [Read more]
When I finally got called in Mrs. Ormston had completely won Emeraude over ...and she (E) had no interest in accompanying me lol. Mrs. Ormston said she didn't mind her staying with her to play and I knew this was sincere and that she was in great hands so let Emeraude stay with her having fun... [Read more]
Emeraude has felted quite blessed this week and I have been teasing her that she is a ‘lucky ducky’ as Monday we received a call that she had won Field’s colouring contest which was a beautiful basket full of really neat goodies including: chocolate markers stuffed duck she & [Read more]
I needed to stop by the hospital first for a dilaudid injection before the three of us went to play at the Lion’s beach to play (Lloyd would be heading out for NSSSAA in Geraldton tomorrow) and the kids went by the cafeteria for some sandwhiches in the meantime. After eating they headed [Read more]
...leave it behind in his locker to rot not wanting to stand out or being embarrassed (I was never on many sports teams but my freinds and I always loved extra food, as I mentioned so have his friends when I've done stuff, so I don't really understand his view on this but still try to respect it [Read more]
I am realizing that it is going to be incredibly difficult to not only wake up tomorrow but also attend my a.m. doctor’s appointment in any kind of participatory way. I am struggling to peice together the pages of notes and changes that Dave (EDC) and I made to my cover letter as I am [Read more]
This week seems to be flying by faster than I can process. I promised the EDC photos that I have not even had a chance to look through yet *eesh*, Tomorrow I have an appointment with Dave (from the EDC) to work on my cover letter for Second Story Press and I had hoped to be much [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
