Another day hospital free 🙂 and still feeling fairly good (a little tired but none of the fatigue I dealt with before the solumedrol treatment. Still working at controling my appetite and I do feel like I may be making some ground (very minimal but some). I delivered the letter requesting a [Read more]
and then POW!! right out of the blue as Emeraude & I were making snack this morning the balloon in the pinata pops! only problem is that we hadn’t yet gone high enough up the balloon so we put a new one in and blew it up again until it filled out the shell of [Read more]
Ok, so… haven’t done very well so far with self-control and efforts I should be making to maintain the weight I’m now at. Friday I couldn’t resist the strawberries & chocolate, last night there was cake mix & salsa w/burger (don’t even like salsa usually it [Read more]
Well, my treatment was definitely successful…I’ve been scared too say that, scared to jinx it, scared that I might be wrong and have it fade after just a day or two but it would seem that I am free – for now. Last night I even went in for a shot of Dilaudid, partly worried [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
I was relieved to see Bonnie was attending when I went in this evening. The IV that had been put in last night (anticubital by my request) looked awful, the butterfly sides not having been taped had gouged into my arm (read yesterdays…) and so I asked her if she could put in a new [Read more]
Well, the 5 day predinose attempt is done (it finished Sunday); Dr.Crawford wanted me to take 50mg of oral prednisone daily as he though t this would improve my symptoms (I am as I write, feeling a little concerned that perhaps he too is falling into the idea of focussing on pain as my worst [Read more]
Monday I decided to keep it simple. Lloyd was nice enough to realize we were loosing our day and after badminton he became a chef. When we came in from collecting our snow and before starting our experiments we were able to sit down at the table as Lloyd had even set the table perfectly in [Read more]
A very long day, faster paced than I like to live through but all in all it went well. I started the day at the hospital, getting pain meds after having taking oral meds to no avail around 6:30am and it looks like my day will most likely finish with a trip there as well [Read more]
Last year, 2008, Ontario had it’s first official Family Day which was put in place fufilling an election promise from Premier Dalton McGuinty. It is great to see that, in Manitouwage, this is being taken to heart with the majority of businesses/services (including all the schools, the OEYC [Read more]
I’ve fallen ridiculously behind on my blogging. My days seem to blend in to each other as it has been necessary for at least a month now that I go to the hospital every day (sometimes even two or three times in a day) for injections for pain meds. I am incredibly fatigued and feel [Read more]
Monday the Family Place’s Gross Motor Skills Program started at the Rec Centre. I have to say that Emeraude did enjoy herself,very much. I was so impressed with her when at the beginning of the class she suggested follow the leader and then asked to be the leader and did a great job [Read more]
It has become pretty clear that any hope of treatment options before Dr.Crawford’s return is not realistic. I have decided to lower my expectations for what I am capable of doing around the house & with the kids and therefore, reduce the need for pain meds. Yesterday I chose not to go [Read more]
