Posts Tagged ‘living with multiple sclerosis’
Written by admin on 05 June 2009
I needed an activity that didn’t require any physical ability and very little cognitive ability (when I am in a lot of pain, it can be difficult to concentrate so activities that don’t have many rules or steps are great) and Emeraude received so many beautiful and educational gifts for [Read more]
Written by admin on 04 June 2009
Ok, so the article for Turn off the screens week is giving me a hard time… I’d love to blame it on Jackie from whom I’m waiting for a couple numbers but really can’t as I could, in theory, write it out with fake numbers and then just fill them in when I have them. [Read more]
Written by admin on 04 June 2009
More soccer fun… Emeraude has certainly come out of her shell at soccer. Last night was so great to watch, she not only ran with her team but actually kicked the ball and participated in the game on more than one occasion. During her short time as goalie she even made a save! I’m so [Read more]
Written by admin on 01 June 2009
just a quick note… I had the chance to be reminded today why I had been enthused about my family doc when first meeting him in nov.08. Apparently he has found a pain specialist that he thinks will be very useful in finding options for me. I can not say I am confident but his [Read more]
Written by admin on 31 May 2009
I’m back… I was an hour early, my pain seemed at the point that it must be time and so the math made sense (I wanted it to be time and wasn’t paying enough attention counting to four lol). I had called Vickie (I would never do so late at night but she had told me [Read more]
Written by admin on 27 May 2009
Written by admin on 26 May 2009
Township of Manitouwadge Leisure Services Youth Soccer ProgramI think this may be Emeraude’s favourite part of soccer practice, lol. [Read more]
Written by admin on 22 May 2009
How discouraged I feel at the very thought of possibly being unable to take our annual camping excursion to White lake… Just typing it brings tears to my eyes and I fear so deeply that this could actually happen. I would not have ever thought this could even be possible unless I was truly on [Read more]
Written by admin on 19 May 2009
It has been another very long day. I had such severe pain as I came near my 4 hr injection times it was hard to deal with (mostly tireing and frustrating that I had to go to the hospital as I now know I have other options that should be made available to me and [Read more]
Written by admin on 18 May 2009
Pipe Cleaner Fun This afternoon, when Emeraude would normally take her nap, we settled on my bed with a mountain of pipe cleaners and worked on the craft I had found from MarthaStewart.com the other day. The instructions were very clear, definitely a fine motor development activity, and tons [Read more]
Written by admin on 18 May 2009
I am pretty much in the same shape these days as I have been all year other than 3 good weeks in March when the IV Steroids I received successfully reduced my symptoms (fatigue, pain, weakness in legs, etc). I go to the hospital for dilaudid injections to make the bone/muscle pain (neuropathic [Read more]
Written by admin on 17 May 2009
We went to the playground behind Graham (street) tonight and had a blast. We laughed too hard, played shark (some of that in the photos), boating, loved every minute of the silliness! Both the kids were so much fun. We went to the Petro after and bought gummy bear twisters (Lloyd & Emeraude) [Read more]
Written by admin on 17 May 2009
Emeraude & I transplanted some of our seedlings today. Though they all need to be done, to keep it enjoyable we only do as much as each of us is up to. We transplanted 3 squares (with 9 compartments each with a seed or two planted originally for the most part) of radishes and a [Read more]
Written by admin on 17 May 2009
Today was crazy… Too much time wasted at the hospital and without any good reason (mix ups and miscommunications ruled my day which can be extremely frustrating, thankfully the nurse who was working Friday evening is very patient and sweet). So, when I was finally able to get to the [Read more]
Written by admin on 16 May 2009
So, we ended up making our toilet paper puppets instead of the pipe cleaner creatures although I did show Emeraude a quick version of the pipe cleaner creatures while Lloyd was in the grocery store and we were waited in the van and she agreed that it is a definete must-do for another day :). [Read more]