MS/Migraine Connection from Reader’s Digest – Click for PDF. Gotta love this… I have suffered from dibilitating head pressures (not regularly) which only occured since my MS Diagnosis. I insisted to doctors that these were NOT IVIg but connected to my menstrual cycle & MS and [Read more]
Another day hospital free 🙂 and still feeling fairly good (a little tired but none of the fatigue I dealt with before the solumedrol treatment. Still working at controling my appetite and I do feel like I may be making some ground (very minimal but some). I delivered the letter requesting a [Read more]
À matin j’espérais vraiment faire du ‘travaille d’école’ avec Emeraude et cela n’aurait pas pu mieux finir…  Nous avons travaillé dans un des livres que Grandmaman nous a trouvés sur ces voyages, pleins de couleur et d’autocollants – parfait pour Emeraude! Elle aime bien [Read more]
Ok, so… haven’t done very well so far with self-control and efforts I should be making to maintain the weight I’m now at. Friday I couldn’t resist the strawberries & chocolate, last night there was cake mix & salsa w/burger (don’t even like salsa usually it [Read more]
Emeraude & I went to watch Lloyd play volleyball tonight. It’s not actually  volleyball season (he’s also in badminton these days) but it is his sport of choice and I love to watch him enjoying himself so much. It was great.  [Read more]
Well, my treatment was definitely successful…I’ve been scared too say that, scared to jinx it, scared that I might be wrong and have it fade after just a day or two but it would seem that I am free – for now. Last night I even went in for a shot of Dilaudid, partly worried [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Great morning with my girl. Happy to be getting our mornings back somewhat (result of solumedrol I think). We started out making ‘soup’ and recipes with the beads and too many bowls/ladels/potato masher lol and then switched to some bracelets. Emeraude began working on a necklace for [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
I was relieved to see Bonnie was attending when I went in this evening. The IV that had been put in last night (anticubital by my request) looked awful, the butterfly sides not having been taped had gouged into my arm (read yesterdays…) and so I asked her if she could put in a new [Read more]
It was only a matter of time apparently before Dr.Crawford would be influenced by others at the hospital in this  ridiculous idea that I should only be allowed pain relief for certain amounts of time and then it’s just too bad so sad, deal with it. Or at lest that is the only thing I can [Read more]
Well, Emeraude & I went sliding again today. It was AWESOME! So warm out we had a ton of fun (+ 1 crash which I survived suprisingly well lol). Lloyd is still sick, this morning it almost seemed like he was still getting worse which was really worrysome. I’m still not feeling very [Read more]
Just another trip to MGH for pain meds. Emeraude was with me and couldn’t resist the puddles along the sidewalk outside. Still going 3-4 times/day for Dilaudid injections which really limits my ability to live like a normal person but I am grateful that I have Dr.Crawford on my side during [Read more]
Emeraude & I began our gardening today (March 16,09). Last year we started all the veggies & flowers early indoors as well but I got over eager and we transplanted them outside too early – they froze and her beautiful healthy plants were mostly demolished (check my facebook page or [Read more]
Well, the 5 day predinose attempt is done (it finished Sunday); Dr.Crawford wanted me to take 50mg of oral prednisone daily as he though t this would improve my symptoms (I am as I write, feeling a little concerned that perhaps he too is falling into the idea of focussing on pain as my worst [Read more]
