Well, my treatment was definitely successful…I’ve been scared too say that, scared to jinx it, scared that I might be wrong and have it fade after just a day or two but it would seem that I am free – for now. Last night I even went in for a shot of Dilaudid, partly worried [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
What a wonderful day! When we first arrived, I realized that the mittens Emeraude had werestill wet and Danile offered to come back to my (the kids) house and pick up a dry pair so Emeraude went along. I sat there for a while waiting before realizing this was my opportunity to go up on [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
Appointment with Dr. Crawford today went very well although I did again forget a few important things I had hoped to speak with him about and it does not seem that we have the follow up appointment that we were supposed to start doing a week after any regular appointments for that reason. So that [Read more]
Symptoms are really interfering with my ability to have any quality of life. 8am 50mg oral prednisone 120mg ratio-morphine Lloyd had to be at school early for a basketball game and at 8am was just putting Emeraude next to me in bed to say goodmorning. I struggled to balance on my legs as there [Read more]
day 3 steroid treatment did not go so well… the treatment was okay, the results PLtheRhhh (that’s a raspberry & thumbs down). my face really is as red as it appears on the photo :S (that’s the steroids). Emeraude was sweet enough to come keep me company as I received my [Read more]
"my IV Shunt had been put in without any gloves port-a-cath (which I have under my left side, kind of below my collar bone) being worn and I was a little concerned with the possibility of yet another skin infection (I dealt with many of these before finally having my 'picc line' and then about a [Read more]
