It was a crazy day but before Emeraude was to head to her Dad’s I thought we could do a little gardening. Our beans (haricots) grew like CRAZY and I knew she would enjoy transplanting them and getting a look at the roots. Emeraude found a few beans that were just barely germinating and this [Read more]
Emeraude & I went to watch Lloyd play volleyball tonight. It’s not actually volleyball season (he’s also in badminton these days) but it is his sport of choice and I love to watch him enjoying himself so much. It was great. [Read more]
Well, my treatment was definitely successful…I’ve been scared too say that, scared to jinx it, scared that I might be wrong and have it fade after just a day or two but it would seem that I am free – for now. Last night I even went in for a shot of Dilaudid, partly worried [Read more]
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my [Read more]
Great morning with my girl. Happy to be getting our mornings back somewhat (result of solumedrol I think). We started out making ‘soup’ and recipes with the beads and too many bowls/ladels/potato masher lol and then switched to some bracelets. Emeraude began working on a necklace for [Read more]
Last night… Thought we’d go in at a decent time tonight as I have messed up Lloyd & Emeraude’s evenings/bedtimes during this whole treatment. Lloyd has badminton and so Emeraude came with me to MGH and I hoped to get her some supper at the cafeteria between IM Toredol and the [Read more]
What a wonderful day! When we first arrived, I realized that the mittens Emeraude had werestill wet and Danile offered to come back to my (the kids) house and pick up a dry pair so Emeraude went along. I sat there for a while waiting before realizing this was my opportunity to go up on [Read more]
After 2 hours of arguing with Dr.Crawford about increasing my pain meds, the discussion turned to Tuesday’s (tomorrow) appointment and that I was hoping to suggest giving my IV Solumedrol treatments again (they failed in January but that was a full 3 months ago and my body might have lost [Read more]
Some of the other seeds are finally coming up. The only ones still hiding are the parsnips. Wondering what to do about the ‘greenhouse’ lids with the peas touching the top, I don’t want her healthy sprouts to start leaning over but worry if I take it off the ones that still need [Read more]
Lloyd had rented the newest Star Wars flick to watch with his sister during the afternoon as he was still feeling fatigued from strep throatand wanted her to enjoy doing something out of the ordinary during the March Break. This got her to thinking about the light saber she had from Halloween [Read more]
It was only a matter of time apparently before Dr.Crawford would be influenced by others at the hospital in this ridiculous idea that I should only be allowed pain relief for certain amounts of time and then it’s just too bad so sad, deal with it. Or at lest that is the only thing I can [Read more]
Our sprouts are growing like crazy already! Emeraude was so excited this morning when after just 2 days (for some, 3 days for others) she already had some great sprouts coming up. So far radishes seem to be the fatest growing by far, there are also some broccoli coming up as well as some peas. [Read more]
Well, Emeraude & I went sliding again today. It was AWESOME! So warm out we had a ton of fun (+ 1 crash which I survived suprisingly well lol). Lloyd is still sick, this morning it almost seemed like he was still getting worse which was really worrysome. I’m still not feeling very [Read more]
I had gone for my pain meds about an hour and a half earlier and was in pretty good shape so Emeraude & I went to the hill at Friends (bakery/coffeshop) and had a blast. It was so warm out I didn’t even need gloves, she was in a super sliding mood and had me [Read more]
Just another trip to MGH for pain meds. Emeraude was with me and couldn’t resist the puddles along the sidewalk outside. Still going 3-4 times/day for Dilaudid injections which really limits my ability to live like a normal person but I am grateful that I have Dr.Crawford on my side during [Read more]
