later that day… JUne 5th
After a very long day, yet another trip to the hospital for pain meds (these had been quite discouraging on this day as their had been an incident where a nurse refused to give me my meds wanting me to wait & speak to the doctor and not thinking I would, (of course patients do USUALLY have their right to decide whether or not to see the doctor respected, their was a standing order and the doctor had left a note ASKING if I wanted to see him – IF I wanted… I received my meds well over an hour late because of this, crying in excrutiating pain {I had already been in tears when I arrived as the meds have yet to be truly titrated – they are currently adequate if everything is going according to schedule with perfect weather and no physical activity, which of course I should have – and were not adequate on this day with me weak from fighting a cold} thank God that Vickie had come along, as had her husband who played with Emeraude the whole time). My doctor of course continues to deny the referal I want for a subcutaneous pump which would put an end at last to the every 4 hour visits to the emergency I have been dealing with since January 2009 (with only a 3 week break in March when my steroids actually worked) and any associated complications.
Anyways, this was later that day and I was not in good spirits. Thankfully my angels, Emeraude & Vickie were along so I still could not help but smile and laugh. Here is my beautiful girl dancing for me as we waited for Vickie to leave (I think she was gone back in to retrieve something I forgot).
When we arrived home, although it was late (this visit took over an hour again inspite of the emerg being relatively calm, that is, the reality of what I, and my children and Vickie who often drives me there, continue to deal with daily) we decided to stick to our plan of strawberries & chocolate to end the day on a good, yumm