03.27.09
Kids are at school and so will keep this short. Feeling very hopeful about the results of the IV Solumedrol (5day/1500mg/day) I received this week. My MS Symptoms (pain, fatigue, cognitive functions, etc) have defenitely been reduced. Will go for blood work today however to check ESR levels as my joints seem to be just as bad as prior to the treatment (leading me to belive Dr.Crawford is on to something looking for some other probem like arthritis although typically also treated with anti-inflamatory agents such as steroids so why no improvement?).
It is encouraging to think I may have options for summer and that Dr.Crawford can finally have the opportunity to see me “well” for at least a few weeks and understand my use of the injectable opioids a little more (and lack of when I am feeling better). Will be overwhelmed trying to catch up on 3 1/2 months worth of housework/business work/family time/the list goes on and on. Where to start and trying not to overdo it (such a tricky balance there as it is impossible to know when I have worn myself out or if it’s just MS living).
we have agreed that IVIg is NOT an option for me again. Too little in the way of positive (a few good hours the 1st day) and too many problems/side effects (I was out of commission COMPLETELY for the week. head pressures, vomitting, weakness, fatigue, stuck in bed, etc).
Defenetily looking back on the past few months as a positive in some ways, having certainly ruled out any idea of relapsing/remitting as once again, I continued to deteriorate as my successful treatment fell further behind me (there are no remissions sans-treatment) which means we could be possibly using more adequate disease-modifyers which would keep me in shape better. Am still confident with Dr.Crawford being on the hunt for options which is great for lowering stress!
