MS.Jan.08 – exacerbation continues
Symptoms are really interfering with my ability to have any quality of life.
8am
-
50mg oral prednisone
-
120mg ratio-morphine
Lloyd had to be at school early for a basketball game and at 8am was just putting Emeraude next to me in bed to say goodmorning. I struggled to balance on my legs as there was a lot of pain and the pain in my arms/hands made it quite impossible to use them for support
9am
- cyclobenzaprine
- marvelon
- 60mg MSIR
I was determined to give Emeraude some semblance of normal and get on track with activities for her. The two of us decided the OEYC would be the best place for this. The cab picked us up (although Grandpapa had also arrived at this point but I still owed the cab fare for getting to MGH and the Family Place has coupons for free cabs) and we were on our way to play…
15h30 back for another dilaudid injection… Spoke with Dr.Habud (spelling??) regarding IVIg or what treatment may be an option with the steroids having failed. Very concerned that he seems to busy talking to hear anything at all and really not aware of the severity of my situation (I am the only adult in the house, if I am unwell that puts alot on Lloyd’s shoulder + although I can babble on here easily enough, I can’t put together any articles that will pay in this state) I cannot continue like this for a month waiting for Dr.Crawford to return, I am beginning to panick a little *prayers welcome**
